All nine sites of the Neonatal Seizure Registry are pediatric centers with a Level IV Neonatal Intensive Care Unit (NICU) and pediatric epilepsy program. All sites follow American Clinical Neurophysiology Society 2011 clinical guidelines.
NSR Steering Committee
- Principal Investigators: Hannah C. Glass, MDCM, MAS and Renée A. Shellhaas, MD, MS
- Site PIs: Cameron Thomas, MD, MS and Courtney Wusthoff, MD
- External Advisor: John Barks, MD
- Parent Representative: Marty Barnes
Current Participating Sites and Investigators
- University of California, San Francisco Benioff Children’s Hospital
- University of Michigan, C.S. Mott Children’s Hospital
- Stanford University, Lucile Packard Children’s Hospital
- Massachusetts General Hospital
- Boston Children’s Hospital
- Janet Soul, MD
- Twitter: @soul_janet
- Janet Soul, MD
- Duke University, Duke Children's Hospital
- Children’s National Medical Center, Children's National Hospital
- Cincinnati Children’s Hospital Medical Center
- Children’s Hospital of Philadelphia
Advisors
- Donna M. Ferriero, MD, MS
- Twitter: @DmFerriero
- Ronnie Guillet, MD
- Faye Silverstein, MD
- Kevin Staley, MD
Other Key Participants
The Neonatal Seizure Registry is an active collaborative with key participants and advisors from around the globe, as well as one or more clinical research coordinators at each participating site.