Resources

Support yourself and your family
Know that you are not alone.

 Learn the signs

 


 Seek Support

A purple flower with a yellow center, surrounded by the text "Casey's Circle" in a circular frame.

The words "HOPE for HIE" in white text on a blue background.

The image shows the "Hand to Hold" logo with the tagline "NICU Babies - Parent Support" in green, alongside a stylized "H."

A logo for the Child Neurology Foundation, featuring four colorful handprints on the left and the text "Child Neurology Foundation, Creating a Community of Support" on the right.

 


 Ask your healthcare provider or social worker to connect you with resources for social and emotional support

Here’s a list of potential questions to help parents begin conversations with their baby's healthcare team:

Question Prompt List


 Celebrate every moment and small victory with your child and family


 Explore NICU Toolkits available here

English: Parent Well-Being Infographic

This infographic was created by NSR and Hope for HIE, using information adapted from the NSR.

Español: Infografía de bienestar de los padres

This infographic was created by NSR and Hope for HIE, using information adapted from the NSR.

 

English: Infantile Spasms Infographic

This infographic was created by NSR and Hope for HIE, using information adapted from the NSR, Infantile Spasms Action Network and the Child Neurology Foundation.

Español: Infografía de Espasmos Infantiles

This infographic was created by NSR and Hope for HIE, using information adapted from the NSR, Infantile Spasms Action Network and the Child Neurology Foundation.

English: Parent Well-Being Trajectory Infographic

This infographic was created by NSR and Hope for HIE, using information adapted from the NSR, Infantile Spasms Action Network and the Child Neurology Foundation.

Español: Infografía del trayectoria de bienestar de los padres